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Get the latest thalassemia information and connect with a Clinical Nurse Educator.

Clinical Nurse Educators are employees of Agios Pharmaceuticals who work closely with individuals, families, and care teams to provide education, tools, and resources to support people living with thalassemia. They also provide opportunities to make connections with other others affected by thalassemia.

Clinical Nurse Educators do not provide medical advice. For medical advice or treatment-related questions, please talk to your healthcare team.

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Tell us who you are*

How many times a year do you have a transfusion?

Which of the following areas most interest you?

I agree to (you must choose at least one):

One-on-one conversations about thalassemia with a Nurse Educator or Patient Support Manager, in-person or phone (Optional)

By selecting, "one-on-one conversations" I consent that Agios and its agents (Clinical Nurse Educator or Patient Support Manager) will contact me at the number I provided above (Phone/SMS/Text^†) and send me information about thalassemia or answer my questions about living with thalassemia
I attest that I am eligible to participate in this program:
- I have been diagnosed with thalassemia or I am a caregiver/advocate for a person diagnosed with thalassemia
- I understand I will receive educational information about thalassemia, opportunities to join research or other updates from Agios
- I am at least 18 years old and a U.S. resident

Receive communication about thalassemia via email

Agios understands protecting your personally identifiable information is very important. Agios does not share personally identifiable information you share with us during our phone, SMS/Text, or e-mail communications with third parties other than Agios’ vendors who perform services on Agios’ behalf.

Consent to Receive Communications:

^†If I select the SMS/Text and/or phone call checkboxes above, I consent to receive text messages and/or phone calls, respectively, from Agios (or those acting on its behalf) for marketing, operational and informational purposes, such as support and educational resources on thalassemia as well as research opportunities, and other information that may be of interest to me. Text messages and phone calls may be generated using automated technology and will made to the phone number provided on this form. I may opt-out of text messages at any time by replying “STOP” to the number from which I received the text message. I can also unsubscribe from phone calls and text messages by calling 1-800-951-3889, and I can unsubscribe from promotional e-mails by clicking unsubscribe in one of Agios’ promotional e-mails.

By clicking SUBMIT, I agree that the electronic signature terms and conditions presented in the Agreement to Receive Disclosures and Consent Electronically. I understand and agree that the information I provide will be used in accordance with the Agios Privacy Policy, including to provide me with marketing information, offers, and promotions, and to contact me for my opinions regarding Agios products, programs, and services.