Resources

Resources and support for Thalassemia

Thalassemia Monitoring

The Thalassemia Monitoring Guide offers expert-based recommendations for managing adult non–transfusion-dependent patients. This includes schedules to track disease progression and monitor complications as well as conditional interventions that can support patient needs.

Thumbnail of the Thalassemia Monitoring Guide, available for download

myAgios Patient Support Services

A customized support program for your patients living with thalassemia

myAgios has a dedicated team of Clinical Nurse Educators* (CNEs) on staff who work closely with patients, families, and care teams to provide education and resources to support patients in their thalassemia journey.

myAgios CNEs can offer your patients:

  • Individualized support, in person or virtually, to meet your patient where they are in their thalassemia journey
  • Educational resources to better understand their disease
  • Connections with others in the thalassemia community to share their experiences
  • Educational webinars to hear from thalassemia specialists and other patients
Help your patients stay informed with a CNE

For more information, call our Agios team directly. Mon-Fri, 8 AM to 8 PM ET: 1-877-77-AGIOS (1‑877‑772‑4467).

*A CNE does not provide medical advice.

Monitor complications to improve impact on patient QOL

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