IN CASE YOU HAVE QUESTIONS, WE HAVE ANSWERS

Thalassemia is a group of rare inherited blood conditions that affect the production of a protein called hemoglobin. Learn more about thalassemia

In thalassemia, there are changes to the genes that instruct the body to make hemoglobin. As such, hemoglobin is not produced properly, and red blood cells are not healthy. Learn about red blood cells and thalassemia

A blood transfusion is when blood is given to the patient through a tube inserted into a vein in the arm. Some people with thalassemia will need regular transfusions to treat anemia. Learn how thalassemia is managed

Common symptoms vary from person to person but may include:

• Fatigue
• Weakness
• Shortness of breath
• Dizziness and fainting
• Paleness
• Headaches

These are not all the symptoms of thalassemia. Talk to your doctor to discuss other possible symptoms. Learn more about symptoms

Thalassemia can lead to complications, some caused by iron overload, including those related to heart, bones, hormones, and liver. Some complications can lead to end-organ damage and can be life-threatening if not properly monitored and managed. Learn more about monitoring thalassemia

Early and regular monitoring for all types of thalassemia is critical. Monitoring helps you and your care team identify problems and prevent them from getting worse. Learn about monitoring thalassemia

There are no medications currently available for ALL thalassemia types, but ask your doctor about new therapies and treatments in development. There are ways you and your care team can manage your thalassemia:

• Blood transfusion–replenishing the body with healthy red blood cells (RBCs) and hemoglobin
• Iron chelation therapy–removing excess iron from the body due to thalassemia or blood transfusions
• Folic acid supplementation–providing a vitamin needed to make healthy RBCs
• Spleen removal (less common)–may be considered to increase RBC count

Learn how thalassemia is managed

Because thalassemia affects everyone differently, care teams may be unique to each person’s needs. The care team may also change over time to continue to suit individual needs and circumstances. Learn about your care team options